It is 12:30am, so I don't really know why I am writing a blog entry. But I have something on my heart so here goes.
Tonight on the CMA Awards they had a segment honoring Glen Campbell. It wasn't anything super duper life-changing, just three country stars singing his songs...but what struck me is that every time the cameras went on Mr. Campbell he was singing along. I know that doesn't seem like anything groundbreaking.
But Glen Campbell has Alzheimer's.
In my very limited experience with Alzheimer's Disease I have learned a few things. First and foremost in everyone's mind (and justifiably so) is the fact that Alzheimer's ravages the mind and completely changes the lives of the patient and their family. It is a horrible disease that I am now seeing the effects of on a more firsthand level in my own family. And let me tell you....it is very very hard.
The caregiver in me can really really appreciate an Alzheimer's patient though. Yes. It is still insanely demanding, but when you are "in the biz" you have to focus on the positives that are there. You have to or you will go insane.
That, if I may pause here a second, is a spoonful of advice that I would give to family members of a patient with Alzheimer's. Focus on the positive. Your loved one, if diagnosed with Alzheimer's, will inevitably become a stranger to you. It isn't just that they may not recognize you...the person you knew and loved will never be the same person. You will not really know them. Get to know them...get to love them as they are, not as they once were or who you want them to be. The soul, the heart of the person you love is in this "new person." It is just going to take effort and time to learn how to see it again.
Anyways, back to why I am up so late (early??) writing. One of the positives that I have seen in my work with patients with dementia and Alzheimer's is something that I like to call a "heart song." A heart song is kind of a phenomenon (there may actually be a term for it...I just don't know what it is) that can happen when a person has dementia. The patient may not remember their name, their children or their own reflection in the mirror. I have worked with people like that. But I think (hypothesis?? sounds clinical almost!) that most people have this one thing that has become so ingrained into who they were that it is natural when they are asked to do it now. Even with dementia. One day at one of my jobs, I was running an activity for the clients. We were putting together floral arrangements. I was sitting with the "difficult cases" to try to help direct them. Imagine my surprise when one of those clients knew exactly what to do! She just did it. And she helped others. I also think of the charactor in The Notebook, who could play songs on the piano without the music and didn't even know what she was doing. Or retired, elderly doctor's who still know what to do when they are called upon or witness an emergency. Or Glen Campbell, singing along with his songs tonight.
I don't know much about Mr. Campbell's history or prognosis with the disease, but seeing him on that award show tonight got me thinking,
"What is MY heart song?" Is there something, anything in my life that I would want to be one of the only things that were natural to me?? Right now it would probably be care-giving. Is that what I want to completely define who I am? It is "noble" and you bet your bottom dollar that I am darn proud of the work I do, but for me, work is work. I never want to get to the fact where I am defined by my work. I am getting close to that and I don't like it.
I want my relationship with Jesus to be my heart song. I want that, at the end of the day, to be the only thing I can do "well." I want to have such kinship with my Savior that if someday my mind is gone, I will never forsake Him, even for a moment. I am not at that point right now. At least, I don't think so. Leave it to the CMA Awards and Glen Campbell to convict me of that!
Please pray for me!! I am returning the blessing, friends! I do, I pray for you as my readers. Please let me know if there is anything specific!